calling attention to rare disease patients.

news dispatch recently, popular in foreign social networking "Ice Challenge" transfer to Chinese, you will own it "cool" with cold water, in order to "rare disease amyotrophic lateral sclerosis (ALS) patients," or "gradually frozen people" fundraising.

As of

yesterday, rare disease care center the donation party "porcelain doll" has received nearly 1400000 yuan donation. In addition to more than 70 IT mogul, entertainment stars, sports stars to participate in national health planning, also is "call", then its spokesman Mao Qunan in the name of the individual donations, calling attention to rare disease patients.

"ice wind" blowing into the China

"Ice Challenge" rise in July in American, its rule is simple, participants will be a bucket of ice water on his head, then you can call 3 people accepted the challenge, by invitation if you don't fight, you need at least $100 Cheap Sabres Jerseys to the ALS association.

this is full of "happiness" activities caused great concern in a few days, USA President Obama, Russian President Dmitry Putin, Facebook founder Mark Zuckerberg and per capita participation?.

through "Ice Challenge" of the boom, in August 18th, Beijing porcelain doll rare disease care center also Cheap Wild Jerseys launched China ice challenge, hope everybody can pay attention to other rare disease group and gradually freeze situation.

activity after the launch, millet, Baidu chairman Lei Jun CEO Robin Li, Foxconn CEO Terry Gou have to accept the challenge. Then, the ice "pouring" in the entertainment circle, Zhang Ziyi, Huang Xiaoming, Andy Lau and other stars have also uploaded "Ice Challenge" video.

3 day donation of nearly 1400000

launched the ice after the challenge, "porcelain doll" center within three days of attention degree to rise rapidly, according to the "porcelain doll" responsible person Wang Yiou introduces, up to yesterday afternoon 4 when Xu, "Ice Challenge" received a total of 4728 people love support, raised nearly 1400000 yuan, including 1000000 yuan from the Wanda Group Chairman Wang Jianlin Wang Sicong, nearly 400000 other public donations are scattered.

and Wang Yiou said, porcelain doll do a Cheap Winnipeg Jets Jerseys lot of publicity for 6 Cheap Flames Jerseys years, but most people are not particularly focus on rare disease groups, also do not have the opportunity so as to form a public discussion.

she hopes that through this activity, let the rare disease patients more go to public view, in order to get attention in the medical, education and employment.

■ case

Zhang Quanling was named Health Commission donation challenge

yesterday, "Ice Challenge" has begun to enter the field of media, CCTV host Zhang Cheap Flyers Jerseys Quanling completed the challenge, named "National Health Planning Commission" to accept the challenge.

20 minutes, the State Planning Commission official who micro-blog "health China" said, rare disease prevalence rate of 0.65 ‰ and 1 ‰, the lack of effective treatment. These years.